Casper thriving thanks to RCH
Not long after birth, my little boy, Casper, was diagnosed with a condition called achondroplasia, a form of short-limbed dwarfism. I immediately got in touch with the skeletal dysplasia team at Murdoch Children’s Research Institute (MCRI), and not long after getting in touch Casper joined the clinical trial they’re running; testing the efficacy of vosoritide in children with achondroplasia. Thus began our journey of frequent visits with the team at The Royal Children’s Hospital and MCRI, which has left me constantly amazed by the incredible work of the doctors and nurses. Casper went into respiratory distress after birth and was in the NICU, and due to his condition he’s at an increased risk of other health issues, such as ear infections, sleep apnea etc. Because of this, he has frequent appointments at the RCH and at other allied health clinics to ensure he’s tracking along the way he should be. Casper is now almost 18 months and is happy, healthy, and thriving, thanks to the amazing care and support from the team at the RCH.