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Meet Gus

6th May, 2020

Gus was born a fighter

For Gus Rule, life has been a battle since before he was born.

At 28 weeks gestation, parents Jacki and John were told there was “something wrong” with their baby’s heart.

A week later Gus was born, small enough to fit in his father’s hand.

The tiny newborn was diagnosed with Wolff-Parkinson-White syndrome, a rare genetic condition which causes abnormalities in the heart’s electrical circuit.

It set the young family on a rollercoaster. “It was really touch and go for the first six weeks because things just kept coming to light,” Jacki says.

Gus was ventilated for a long time — he didn’t breathe on his own until he was 2-3 months old.

“Initially when he was in NICU we didn’t know if he would have brain damage.”

Now 4, Gus has been dealt everything from a bowel blockage, to laser eye surgery and chronic lung disease, as well as hospital stays whenever he gets a cold.

But Jacki believes they are the fortunate ones.

“I just feel so lucky — a lot of people say ‘how unlucky could you be’.

“(But now) he is just such a bright spark. So much attitude, such a bright personality.

“I just feel so lucky.”

Originally published in the Herald Sun Weekend lift out, April 4, 2020

Words: Alanah Frost

Images: Alex Coppel and David Caird

Read Gus’ story written by Brigid O’Connell for the Herald Sun in 2016.

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